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Health Care Design Conference - 2013 Boston


About Me

With a background in psychology and fine arts, Nina Gilmore is passionate about designing data visualizations that are useful and visually compelling. As a Principal UX Designer with 13 years of experience in business intelligence systems, her goal is to translate a client's key analytic concerns into data displays that provide a clear and helpful path through the information. That means highlighting potential problems before they become catastrophic, as well as pointing out opportunities for increased success and customer satisfaction.

During her non-work hours, Nina applies her natural curiosity and design skills to managing a health condition that defies easy diagnosis and treatment. Having immersed herself in the study of the body's language of ease and dis-ease, combined with research across a broad range of biomedical topics, she has slowly pulled together a team (comprised of wonderful physicians and alternative practitioners) that has helped her to find a state of better balance and well-being. Nina resists the limitations imposed by illness, and instead pushes for higher hopes and better outcomes through hard work, leaps of faith...and sometimes a good dose of stubbornness.

Q&A with Nina

HxD asked speakers to tell us what inspires and drives them in healthcare and design.

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  • Q1: What is your burning mission in health?

    Ensure that illness not be a limiting factor in reaching one’s highest aspirations, and cultivating a life that is meaningful and worthwhile.

  • Q3: Why it inspires you?

    For me, this film offers an alternative way of inhabiting my body, my life. So often with serious illness, one’s focus becomes singular, anxious:  the pursuit of a diagnosis, treatment plan, and answer. This film gave me my first glimpse of how I might begin to loosen my relentless grip on needing an answer, and focus instead on finding patience and even delight with the questions.  

  • Q4: What is your patient story?

    My first experience with being a patient came in childhood when I developed severe allergies to food, medication, and the environment.  Years later in graduate school, mysterious fatigue and nerve symptoms launched a series of investigations with doctors from different specialties. After many false diagnoses, we have arrived at the likely answers to some of my main symptoms and challenges. Because answers have been slow to come, the larger story of my managing my health has been one of managing unknowns, and learning how to care for myself and find comfort in the face of significant uncertainty.

  • Q5: Why HxD?

    I’m delighted to participate with a group who asks such important, relevant, and humane questions. I believe that the questions you ask, and solutions you propose, will save lives and improve our world.

  • Q6: Why come to your session?

    You want to learn about the patient as a whole person; someone who has all the aspirations, passions, and responsibilities of a healthy person. Managing a health condition is a full-time job in itself; let's talk about how to make healthcare a positive force to support a patient's whole life.

Nina at the Conference

CONFERENCE | Monday, March 25

Living a Full Life with Chronic Illness

We know that too much information can lead to confusion and paralysis, while not enough can leave one exposed and vulnerable. When tackling design problems in data analysis, the key is understanding the needs of the information consumer: providing the right information at the right time so that they can make decisions, mitigate risk, and successfully manage the health of their business. But how do we manage our own health condition in a timely way, avoiding similar risks and pitfalls when confronted with mountains of data – some important, some not, and much of it seemingly impenetrable? How can we effectively advocate on our own behalf, and what must we know about the unfamiliar systems with which we’re interacting? This is the personal challenge to which Nina has brought her skills for listening, observing, and learning over the past 20 years.

Nina will share her experience as a patient and adventurer in the world of healthcare. She’s been poked and prodded, helped and harmed, treated sometimes with compassion and sometimes with indifference. As a designer, she is passionate about opportunities to create experiences more conducive to healing and hope. She’ll talk about what’s worked and what hasn’t worked, and she’ll share her curious experiences on this journey.

"Last year's HxD conference was so amazingly inspiring, and has definitely caused me to strive harder and become more passionate about improving our healthcare system." - 2012 HxD Attendee

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Watch the 2012 HXD Conference Recap